WebJul 6, 2024 · The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. ... There is a Facebook group called Beyond the Measurement that has a lot of members with CCI and EDS who might be able to help with local recommendations and more … WebDec 22, 2024 · Ehlers Danlos Syndrome refers to a highly heterogenous groups of connective tissue disorders characterized by hypermobile joints, a high degree of skin extensibility, and fragile tissues. Thirteen subtypes are believed to exist including classic, hypermobile and vascular EDS. ... It is not a definitive test of CCI, but indicates that …
Craniocervical Instability & EDS: Know the Facts - Centeno …
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Comorbidities Common with Ehlers Danlos Syndrome - Oh TWIST
WebCraniocervical instability (CCI) is a pathological condition of increased mobility at the craniocervical junction, the area where the skull meets the spine. In CCI the ligamentous connections of the craniocervical junction can be stretched, weakened or ruptured. This can lead to stretching and/or compression of the brainstem, upper spinal cord, or cerebellum … http://thezebranetwork.org/craniocervical-instability WebC1-C2 Fusion. As discussed above, as a craniocervical instability specialist, one of the most common surgeries that I see CCI patients getting these days is a C1-C2 fusion. There are a number of types of techniques including from the back with screws going through the joint (trans-articular), from the back with rods and the screws placed at C1 ... gloved learher couch